aliss

Calling all creatives in scotland

The Aliss Project team are inviting people with long term conditions, service designers, product designers, graphic designers, marketers, funding bodies and business advisors to come together for two days and help make these ideas real! You can see an overview of the ideas here. Are you a designer? Are you a ‘geek with heart’? Have you got a business brain? This Thursday and Friday, Snook and Futuregov are running a two day ‘intense’ camp to build an engine which provides better information and support for people living with LTCs.  It runs from 9-5pm on Thursday and 9-4pm on Friday ( If you require travel expenses, please keep your receipts. We will collect them on the day) By bringing together a range of talents, we hope to build an engine which uses the internet to improve information online and offline and new ideas for services.

“We are working with the Scottish Government to create a service that helps people with long term conditions find local support and services. This project is called ALISS ( Access to Local Information to Support Self Management ) and you can catch up on the rest of the team’s activities here. We are documenting our phase of the project at Supporting Pipes.

This project echoes our belief that, by empowering people to make informed decisions about how to manage their life with the necessary support, it can have very real and positive outcomes for all involved”

We’ve been working on the ALISS project for a wee while now, doing an initial phase of research and then three consecutive workshops in Glasgow, Edinburgh and Perth respectively.  We’ve been blown away by the ideas generated in our workshops, and now hope to fully develop them into small prototypes and give them a glossy shine.  With your help!

What happens next is where YOU come in!

There have been three workshops so far. The products from these three sessions will form the basis for our two days further development work in March, when we hope to create a blueprint for a ‘Supporting Pipes service’ together with practical things that improve information provision for people with long-term conditions.

Sign up here. It is set to be a brilliant couple of days and it is a great opportunity to put your talent, skills and knowledge to a worthwhile project.

adventures with FutureGov

"We seem to be in a run of telling you about new projects we’re involved in at the moment. This time round, we’re partnering with our associates Snook to work with the Scottish Government on their groundbreaking ALISS project. Here our project lead, Lauren Currie, tells more…Dominic, FutureGov"

We are working with the Scottish Government to create a service that helps people with long term conditions find local support and services. This project is called ALISS ( Access to Local Information to Support Self Management ) and you can catch up on the rest of the team’s activities here. We are documenting our phase of the project at Supporting Pipes.

This project echoes our belief that, by empowering people to make informed decisions about how to manage their life with the necessary support, it can have very real and positive outcomes for all involved.

Living with a long-term condition can have a profound effect on a person and their social network (family, friends and beyond). The impact can extend to social, economic, psychological, physical, cognitive and cultural aspects of a person’s life. I have been literally blown away by the people I have met so far. People who light up a room with their stories and laughter despite the day to day challenges that can come with living with a long term condition.

People cope as well as they can with the support they have, but frequently do not have the adequate information or skills to develop a sustainable coping strategy to manage their condition, or make informed decisions about their life. We have met people of all ages, with various conditions ranging from depression to asthma. When I asked Kate, who has eczema, what she got out of being part of the eczema society, she said:

“Post and paper work I don’t read or need.”

We want to empower people to learn about their condition, acknowledge the impact it can have on their life, make positive changes and identify areas where they might need support.

Of course, people with long-term conditions are major users of the health and social care support services in both the statutory and voluntary sectors. Often these services are driven by external and internal pressures, rather than placing the people and their direct needs at its centre. That’s why a big part of our research has involved talking to the people who run and provide these services. Alan, pictured below, runs a drop in centre for adults with mental health issues where he encourages people to build their own support services.

supportingpipes_snook

We have been working with people to document their journey, with a particular service user mapping their emotions, physical touchpoints and areas where support is needed. This is Marjorie who was diagnosed with osteoporosis eight years ago and was left to find her own way.

supportingpipes_snook

We have suddenly found ourselves immersed in this world that is what it is because of connections and empathy. These service users see themselves as part of a system and for one reason or another have lost faith in this very system. What we are working to achieve is to seamlessly link up the offline and the online, focusing on the points of contact. The one thing we have learned so far is that face-to-face contact should never be undervalued and people are our best resource – not only can they be hubs of information, but experts in their own lives and health.